Sunday, September 21, 2008

Update on the Twins (Faith & Hope)

Prayer requests:
1) Continue to pray for Faith's hydrocephalus (enlarged ventricles) and the successful treatment of it.
2) Pray that both of the girls continue to do well with their feedings, and that their bowls do not develop some necrotizing something or other thing that could be very serious
3) Continue to pray for the doctors and nurses caring for Faith and Hope.
4) Continue to pray for Steph and my health, strength, faith, courage, etc. (We have heard comments about how well we are doing with all of this and we know it is because of God and the prayers for us.)
5) Continue to lift up our older children
6) Pray for the long term development, etc for Faith and Hope.
7) Whatever else God lays on your hearts...

It is kind of hard to remember what to write when I am not able to write more frequently. Yesterday morning we met again with the doctor and she also mentioned that the girls "tone" was good. She said it had even normalized in the past week or so. We asked what she meant by "tone". It is how rigid/stiff or even how limp they are. It wouldn't be good if they were either all one way or all the other. Somewhere in the middle is best and it seems that our girls are doing good that way. They increased Faith's and Hope's feeding amounts to 5 cc and 4 cc respectively. The doctor also expressed again how they want to be very cautious about not increasing too quickly. She told us that our girls are at higher risk of getting some necrotizing something or other in their bowls because of the low oxygen / low blood pressure during the early rough start they had. They have been doing well with their feeding thus far. I think it was yesterday that Hope had on a little onesie. It seems like Faith's heart rate has come back down too. I think they got ~12 cc of spinal fluid from her yesterday and she still tolerates the procedure well. This morning Steph and I both did the "kangaroo" time with them. I had Faith and Steph had Hope. We got to hold them for ~2 hrs skin to skin; it was a precious time. I think that they got another ~10 cc of spinal fluid from Faith today, and they said it is starting to not be as red as it was. This is encouraging in that is would seem to indicate the bleeding is ceased and her body is starting to break down the blood in the ventricles. I was beginning to be a little concerned about the spinal fluid remaining to be so red. They also upped the girls feeding amounts today; Faith got 8 cc and Hope got 6 cc every 3 hrs today. They seem to have tolerated that well too. We brought in a couple onsies today and tonight they both had one on. We took the older two up to seem the girls tonight too. They hadn't been up in a while, but they also had runny noses and coughs till recently too. Faith is off of her antibiotics again now too.

Well, I think that is about all I can remember now....

I'll write again later. Thank you for all your prayers.

1 comment:

Greeneyes said...

Hi Again ,
I am going back a couple of post ,,,,,,,let me begin by saying that the work wig , WORKS for you the colour on you is very becoming and it suits you so nicely and goes well with those stunning Baby blue eyes of yours , what I would give to have them LOL

it is really nice seeing you in the pics and I also did a happy dance when I read your peach fuzz was coming in , a happy moment indeed , nice to know .
I hope your choice about the allergic to meds problem is not to hard on you , let us know what happens .
And woman HAHAHA I read your other blog , Gosh you are busy , Busy !busy! busy! Wow, you sure fill in your life , I am glad to read you are still able to do the things you need /want to do ,and pray that it stays that way!!!
Also A prayer for Faith and Hope , MAy Gods angels stay by their sides and watch over them , Keep them safe and help them and the family through this time of hardship, God Bless you all .
and Cyber Hugs for you , and Girl , get some rest LOL , youwork too hard ,,,LOL