Monday, October 13, 2008

Another update!

I have so much to share but I really don't have the time to share it right now. I'm doing fine! Really I am! I'm busy living!! Something happened on Friday at Chemo that has even changed me more. I'll share all about it soon, hopefully tomorrow. Tonight, I wanted to post this update on the twins.

Well it's been two days again...Update as of Oct. 14th


Yesterday, Faith got bumped up to 36 cc per feeding and Hope got bumped up to 33 cc per feeding. Faith went up in weight to 4 lbs 2.5 oz and Hope went up to 3 lbs 12 oz. Hope's head grew some more (another 0.5 cm), so that is going pretty well. The physical therapist did baseline evaluations on the girls. Faith apparently is slightly more stiff on her left side and Hope has slightly more stiffness in her legs that the physical therapist expected. I don't think it is a huge thing, but more of a baseline reference to know what to work on. We have been told to go ahead and bring in our car seats so they can do the car seat test. They put them in the car seat for an hour and monitor them. We have to watch a car seat video too. Mainly, they both need to consistently do well with eating from bottle. Also, Faith needs her head to be stable. The doctor remarked on how quickly they have come in such a short time. Praise God.

Today, Faith had her head scan and.... she is still stable. So, no poke! It has been over a week now. They are going to check her again next Tues. (that will be over 2 weeks!). The doctor said that even if she goes home without having had a shunt, it doesn't mean she won't end up needing one later. But things look really good and we are trusting God. Faith was bumped up again to 38 cc per feeding and Hope was bumped up again to 34 cc. They also moved the girls back to the other side again because there are so few babies in the whole NICU. There are only 9 babies in the whole place right now. They put them in their own room again.

Tomorrow, both girls will have their eyes examined again (it has been 2 weeks already...). We are praying that the development will be complete and still with no problems. We also have a 'care conference' tomorrow morning to discuss 'discharge planning'.

Prayer request(s) (still pretty much the same):
1) Continue to pray for Faith's hydrocephalus (enlarged ventricles) and the successful treatment of it.

2) Continue to pray that both of the girls do well learning to take food orally and that they continue to digest it well

3) Continue to pray that the girls' eyes continue to develop well

4) Continue to pray for Hope to continue to grow and develop well (especially her brain/head growth and development)
5) Continue to pray for the girls to continue to fight off their anemia
6) Continue to pray for the doctors and nurses caring for Faith and Hope.
7) Continue to pray for Steph and my health, strength, faith, courage, etc.

8) Continue to lift up our older children
9) Pray for the long term development, etc for Faith and Hope.

10) Whatever else God lays on your hearts... (like things to start to be eliminated from this list :-))

Good night...

Jason and family


Anonymous said...

What a Blessing to read about the twins and how they are doing.
We will continue to Pray and see God preforming a miracle for them.
And to see God carrying you!


Lori said...


I'm so happy for Stephanie and Jason. I know this must seem like the babies have been in the hospital for a very long time. I just can't believe how God is answering all of our prayers.

Being able to go watch their children has been just a blessing to me. I feel like I have a very small part in all of this.

Love you,